About this blog

The intent of this blog is to form an interactive community where parents of dead babies can come together and swap information, stories, tears, memories and encouragement. This is designed to be a neutral place. We are not religious nor are we anti-religious. Come as you are. You can sign the guest book, add your baby(ies) to the baby name memory list, review books on infant death, add warnings about movies and books that contain a dead baby, add your blog to our directory or a number of other things. Don't hesitate to contact us if you have any questions or would like to see something added to this blog. Rule One: be kind to each other. We're all in this together. We all suffer and miss our babies madly.

What's New?

If you are new to blogging and would like to be featured please let us know! Looking for parents who are new to this community and are looking for some peer support.
Showing posts with label Other Websites. Show all posts
Showing posts with label Other Websites. Show all posts

Sunday, August 14, 2011

An Exact Replica of a Figment of My Imagination

"A child dies in this book: a baby. A baby is stillborn. You don't have to tell me how sad that is: it happened to me and my husband, our baby, a son."

I just finished reading An Exact Replica of a Figment of My Imagination. It is incredibly sad and hopeful and heartwarming and heartbreaking all at once. When the author, Elizabeth McCracken, talks about the emotions surrounding the loss of her son, I feel I could have written those words myself.
McCracken was 41 weeks pregnant with her first child when it went horribly wrong. The baby died, for unexplained reasons. She had to deliver the baby, still, and find some way to carry on. She talks candidly about the loss, her feelings for her son before and after birth, her relationship with her husband, the effect it had on them, their friends and family. We follow her through the journey of telling family and friends; of moving and packing up the baby items; of finding a new neutral home to live in; to navigating the brand new world of subsequent pregnancy.
McCracken was fortunate to deliver a rainbow baby, born almost exactly one year later. The rainbow baby comes with a whole new set of emotions and she writes

"Everyday as I love this baby in my lap, I think of my other baby. Poor older brother, poor missing one....The love for the first magnifies the love for the second, and vice versa."

I think the sentiments and experiences in this book can ring true for many of us. I found myself not only able to put myself in McCracken's shoes but also in the shoes of the "childish and unnerving" mother from the book signing who laughed wholeheartedly over a seagull stealing her husband's tuna sub and pressed McCracken to write a book about the lighter side of loss. I think that's another book I'd dive right into!

Tuesday, September 7, 2010

September's Feature: Making Connections

Nicole and her husband Daniel lost their precious daughter Avery Nicole at 25 weeks on March 13th 2010. Avery Nicole was born sleeping due to MTHFR C677T and Factor II G20210A, both blood clotting disorders. Nicole began blogging in June as a way to cope with her loss and to channel her thoughts and feelings. Since starting her own blog, The Avery Diaries, http://myaverynicole.blogspot.com/, Nicole has discovered the huge and hugely supportive community of bereaved parents. A community quick to lend support or a shoulder to cry on. Wanting to do more to reach out to these other parents Nicole set up a new blog aptly titled "BLM Penpals." It is nothing fancy or expensive. Just a group of mostly mom's lending support and encouragement specifically on the days when we need it the most, i.e. due dates and special occasions. Imagine how it feels to walk to your mailbox and see a note or a card from another parent who happened to be thinking of you that week. I myself as a member also find it exciting to go out and look for little trinkets or cards that remind me of the women I spend so much time with online. Nicole has done an amazing job in honouring her daughters life and in reaching out to make connections with other parents. Please go over and check out her blog. Please feel free to leave any supportive comments here for Nicole and if you are interested you can find the information for the BLM Penpal program on Nicole's personal blog. Feel free to share with us any other links you've found helpful in making connections within the community.

October's Feature: Multiple Loss


Please submit nominations on the topic of multiple losses. What blog have you found to be the most helpful? If you are interested in submitting a blog please review the new page "Featured Monthly Blog Submittions" for rules and deadlines.

Friday, September 3, 2010

A Letter to Friends and Family

I have really been thinking a lot lately of what I would like to tell people and how I would like to explain my feelings and grief to my loved ones. I found this great letter online and thought I'd share it. Have you written your own version? What would you add or delete? If you have something similar on your own blog or website please share.

What we wish you knew about pregnancy loss: A letter from women to their friends and family
By: Elizabeth Soutter Schwarzer

When women experience the loss of a child, one of the first things they discover they have in common is a list of things they wish no one had ever said to them. The lists tend to be remarkably similar.The comments are rarely malicious - just misguided attempts to soothe.This list was compiled as a way of helping other people understand pregnancy loss. While generated by mothers for mothers, it may also apply similarly to the fathers who have endured this loss.When trying to help a woman who has lost a baby, the best rule of thumb is a matter of manners: don't offer your personal opinion of her life, her choices, her prospects for children. No woman is looking to poll her acquaintances for their opinions on why it happened or how she should cope.**Don't say, "It's God's Will." Even if we are members of the same congregation, unless you are a cleric and I am seeking your spiritual counseling, please don't presume to tell me what God wants for me. Besides, many terrible things are God's Will, that doesn't make them less terrible.**Don't say, "It was for the best - there was probably something wrong with your baby." The fact that something was wrong with the baby is what is making me so sad. My poor baby never had a chance. Please don't try to comfort me by pointing that out.**Don't say, "You can always have another one." This baby was never disposable. If had been given the choice between losing this child or stabbing my eye out with a fork, I would have said, "Where's the fork?" I would have died for this baby, just as you would die for your children.**Don't say, "Be grateful for the children you have." If your mother died in a terrible wreck and you grieved, would that make you less grateful to have your father?**Don't say, "Thank God you lost the baby before you really loved it." I loved my son or daughter. Whether I lost the baby after two weeks of pregnancy or just after birth, I loved him or her.**Don't say, "Isn't it time you got over this and moved on?" It's not something I enjoy, being grief-stricken. I wish it had never happened. But it did and it's a part of me forever. The grief will ease on its own timeline, not mine - or yours.**Don't say, "Now you have an angel watching over you." I didn't want her to be my angel. I wanted her to bury me in my old age.**Don't say, "I understand how you feel." Unless you've lost a child, you really don't understand how I feel. And even if you have lost a child, everyone experiences grief differently.**Don't tell me horror stories of your neighbor or cousin or mother who had it worse. The last thing I need to hear right now is that it is possible to have this happen six times, or that I could carry until two days before my due-date and labor 20 hours for a dead baby. These stories frighten and horrify me and leave me up at night weeping in despair. Even if they have a happy ending, do not share these stories with me.**Don't pretend it didn't happen and don't change the subject when I bring it up. If I say, "Before the baby died" or "when I was pregnant" don't get scared. If I'm talking about it, it means I want to. Let me. Pretending it didn't happen will only make me feel utterly alone.**Don't say, "It's not your fault." It may not have been my fault, but it was my responsibility and I failed. The fact that I never stood a chance of succeeding only makes me feel worse. This tiny little being depended upon me to bring him safely into the world and I couldn't do it. I was supposed to care for him for a lifetime, but I couldn't even give him a childhood. I am so angry at my body you just can't imagine.**Don't say, "Well, you weren't too sure about this baby, anyway." I already feel so guilty about ever having complained about morning sickness, or a child I wasn't prepared for, or another mouth to feed that we couldn't afford. I already fear that this baby died because I didn't take the vitamins, or drank too much coffee, or had alcohol in the first few weeks when I didn't know I was pregnant. I hate myself for any minute that I had reservations about this baby. Being unsure of my pregnancy isn't the same as wanting my child to die - I never would have chosen for this to happen.~Do say, "I am so sorry." That's enough. You don't need to be eloquent. Say it and mean it and it will matter.~Do say, "You're going to be wonderful parents some day," or "You're wonderful parents and that baby was lucky to have you." We both need to hear that.~Do say, "I have lighted a candle for your baby," or "I have said a prayer for your baby." Do send flowers or a kind note - every one I receive makes me feel as though my baby was loved. Don't resent it if I don't respond. Don't call more than once and don't be angry if the machine is on and I don't return your call. If we're close friends and I am not responding to your attempts to help me, please don't resent that, either. Help me by not needing anything from me for a while.If you're my boss or my co-worker:~Do recognize that I have suffered a death in my family - not a medical condition.~Do recognize that in addition to the physical aftereffects I may experience, I'm going to be grieving for quite some time. Please treat me as you would any person who has endured the tragic death of a loved one - I need time and space.Please don't bring your baby or toddler into the workplace. If your niece is pregnant, or your daughter just had a baby, please don't share that with me right now. It's not that I can't be happy for anyone else, it's that every smiling, cooing baby, every glowing new mother makes me ache so deep in my heart I can barely stand it. I may look okay to you, but there's a good chance that I'm still crying every day. It may be weeks before I can go a whole hour without thinking about it. You'll know when I'm ready - I'll be the one to say, "Did your daughter have her baby?" or, "How is that precious little boy of yours? I haven't seen him around the office in a while."Above all, please remember that this is the worst thing that ever happened to me. The word "miscarriage" is small and easy. But my baby's death is monolithic and awful. It's going to take me a while to figure out how to live with it. Bear with me.

Thursday, February 11, 2010

International Babylost Mother's Day

International Babylost Mother's Day (The FIRST Sunday in May) is another wonderful project from Carly over at Love Reign Over Me (she is also the creator of To Write Their Names in the Sand, which is a wonderful way to honor our babies).

Have you checked this out yet? There's a link on the photo above to this new project. Carly is organizing a special project to go along with the day. A babylost-awareness movie clip to put on YouTube of babylost Momma's. If you'd like to take part, click here.

Monday, February 8, 2010

Waterfall Angels - Name Memorial

I love it when parents come up with a way to memorialize our children. Seems I can never get enough of it! Waterfall Angels is just that, a beautiful way to remember our babies. Lisa (mommy to Jasper) is writting names on a lovely river rock and then taking them down to Rainbow Springs State Park in Florida and taking pictures. She then lovingly uploads them to her blog for the parents to click on the photo and save a copy to their computers. I just loved the ones she did for my sweet Logan. You can see them here. Thank you Lisa for giving me one more sweet reminder.

Tuesday, February 2, 2010

What Etsy has to offer Baby Loss Families

Etsy, if you don't already know, is like eBay (with out the bidding) for handmade items. There are a few things on there for people who have suffered through infant loss, miscarriage and stillbirth. One thing that stood out to me was a shop that sold handmade cards named A Loss Remembered. There is also jewelery, sculptures and whatnot. Anyhow, I just wanted to take a minute and point out this card maker since there are few places to find cards for our special circumstance.

Wednesday, November 11, 2009

The DBC on Facebook

Are you on Facebook?  The DBC has a group page.  You can join it by clicking here.  Its still a young club, but its a nice place to start random discussions about your DB.  There is also a place to photo's, feel free to share yours.  Also feel free to post links to your blog or any website you like (relating to DBs), or even if you have a craft to share (like jewelry, name memorials, etc).

Tuesday, July 21, 2009

Father's Grieving Infant Loss Blog

I came across this blog today and thought it was worth sharing.

from Tim Nelson, author of a Guide For Fathers - When a Baby Dies


Tim Nelson
My wife, Monica, and I suffered the full-term stillbirth of our second child, Kathleen. While that was a number of years ago, I have stayed connected to the issue through my writing and speaking on the topic of father's grief following the death of an infant. I, like many men, had trouble talking about my feelings after my daughter's death. I'm hoping this blog might be a place for dads to share their thoughts about what they are experiencing and find support from other dads.

Tuesday, July 14, 2009

I'd like to blog, but I don't know how.

Blogging is like an online journal. Lots of people find blogging about the death of their baby(ies) a good way to cope, and meet other people in similar shoes. Experts say that keeping a journal may help one through the grieving process.


So, you want to blog, but don't know where to start? First you need to pick a blog hosting site. There are countless ones out there. Here at the DBC I use http://www.blogger.com/ because it is the only one I was familiar with at the onset of my blogging career. I was reading a blog hosted here, and decided to create a blog myself. There are other blog hosting sites such as http://www.livejournal.com/ and http://www.wordpress.com/ or http://www.typepad.com/ to name a few. You can type in "blog" on any search engine and get an extensive list of blog hosting sites.

Once you decide on a host, you need a blog title. For instance, my personal blog is titled "It Only Hurts When I Breathe". Then you'll need a blog address (also known as the URL). This can be the same or different as your blog title. My personal blog address is http://mystolenlight.blogspot.com/ though I now wish that I would have chosen the same name for both, just to keep things simple. Usually that's all you need to get started.

What the heck is a WIDGET? A Widget is a funky little tool you can use on your blog for many different things. Just about anything on the blog that isn't part of a post (a post is where you actually journal) is a widget. For example, Link Lists, Followers, Twitter, Blog Rolls, About Me, Counters, etc. Everyone has their own preference on what type of widgets, if any, they would like to have on their blog.

But it's ugly! There are many websites out there that offer html codes to help you spruce up your blog. They also offer instructions (most of the time). If you use MySpace you may already be aware of this feature. A few websites that offer blog background codes are http://www.thecutestblogontheblock.com/ and http://designerblogsbyerin.blogspot.com/ or http://www.scrapbookgraphics.com/ to mention a few.

Nobody is reading it! In order to get readers and/or "followers" (people who read your blog on a regular basis because they subscribe to the RSS feed) you'll need to be a good blog buddy and read, comment and follow other blogs. You can also post your blog link on catalog websites (http://www.blogcatalogue.com/ is one), Facebook, Twitter, MySpace or other forums.

Tweak the settings. There are many settings that you can tweak to suit your preferences such as allowing comments or not, receiving comment notifications, blogging from your phone or email, archiving, or allowing more than one person to post to the bog. There are many settings that can be played around with and the best way to learn is to explore.

There are lots of ways to make your blog interesting. You can add music, photo's, video's, Twitterings, Links, Blog Rolls and so much more. Some people just prefer the basics, and that's ok too. What ever makes you feel more comfortable.

Other sites with advice and info:
A list of Blog Directories

List of useful links from About.com on Pregnancy/Infant Loss

I borrowed these links from About.com though this is not the entire article. You can see the original article here. I'm sure I'm breaking some sort of copywrite laws, but I found these links to be a very useful tool here on the DBC blog, so though I don't condone stealing stuff from other websites, you'll have to forgive me.


Breaking the News of a Miscarriage or Stillbirth
Pregnancy loss is hard enough on you as the person experiencing it, but many people also struggle with how to inform friends, relatives, and coworkers of a recent miscarriage or stillbirth.

When Miscarriage Grief Becomes Depression
The signs and symptoms of depression are not that different from the signs of typical grief after a pregnancy loss. Thus, when you are grieving a miscarriage or pregnancy loss, it can be hard to tell whether or not you have developed clinical depression.

Naming Babies Lost to Miscarriage or Stillbirth
Some parents grieving a miscarriage find that naming the baby helps in coping with the pregnancy loss. The decision is personal and different people will have different preferences.

Down Syndrome and Miscarriage
A lesser known fact about Down syndrome (trisomy 21) is that the condition can sometimes cause miscarriage, as is revealed by chromosome tests. Researchers do not know why some babies with Down syndrome are miscarried while others survive to term.

Talking to Children About Miscarriage and Pregnancy Loss
Many parents struggle with how to break the news of a miscarriage to their other children. Depending on your children's age, you may choose to explain everything about the pregnancy loss or to not tell them anything at all.

Coping with Unexplained Miscarriage or Stillbirth
More often than not, doctors have no clear answers for why a specific pregnancy loss happened. They know much about general miscarriage causes but can rarely pinpoint an explanation for individual miscarriages and stillbirths, and sometimes this can be hard to accept.

Handling Insensitive Comments from Friends and Relatives After a Miscarriage
Almost everyone who has been through a miscarriage knows about the hurtful and insensitive comments that others can make. Sometimes you can help to educate friends and relatives about what to say to someone who has had a pregnancy loss, but other times you may want to avoid people who make ignorant comments.

What to Do If Your Friend Miscarries While You Are Pregnant
If you are currently pregnant but have a friend going through a miscarriage or stillbirth, here are some important things to keep in mind when you talk to her.

Ultrasound Accuracy for Diagnosing Congenital Birth Defects
Ultrasounds can be fairly accurate for catching certain congenital birth defects, but it cannot provide a guarantee that the baby has no malformations or health conditions. Similarly, an ultrasound can occasionally show a false positive.

October 15th - National Pregnancy and Infant Loss Remembrance Day
Did you know that October 15 is a national remembrance day for miscarriage and pregnancy loss and that October is National Pregnancy and Infant Loss Awareness Month? Here's what you can do during the month to remember your baby or spread awareness of pregnancy loss.

What to Say When a Friend or Relative Has Had a Pregnancy Loss
After a miscarriage or pregnancy loss, your friend or relative needs your support. Learn what to say, what to avoid doing, and how you can give your friend or relative space if she needs to grieve the loss of her pregnancy.

Six Things You Can Do to Help Spread Awareness of Pregnancy Loss and Miscarriage
If you feel the call to do something to help support miscarriage and pregnancy loss awareness and research after the experience of your own miscarriage, here are six suggestions.

Chemical Pregnancy or Clinical Pregnancy?
Chemical pregnancy is a potentially confusing term for a very early miscarriage. Here's how to understand the difference between a chemical pregnancy and a clinical pregnancy, and why you might hear the term clinical miscarriage.

How to Cope with Baby Shower Invitations After a Miscarriage
Attending baby showers after a miscarriage can be deeply painful. Here's what to do if you are receiving baby shower invitations while grieving a miscarriage.

Research on the Link Between Stress and Miscarriages
Take a look at the different research studies that have examined a link between pregnancy stress and miscarriages.

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