About this blog

The intent of this blog is to form an interactive community where parents of dead babies can come together and swap information, stories, tears, memories and encouragement. This is designed to be a neutral place. We are not religious nor are we anti-religious. Come as you are. You can sign the guest book, add your baby(ies) to the baby name memory list, review books on infant death, add warnings about movies and books that contain a dead baby, add your blog to our directory or a number of other things. Don't hesitate to contact us if you have any questions or would like to see something added to this blog. Rule One: be kind to each other. We're all in this together. We all suffer and miss our babies madly.

What's New?

If you are new to blogging and would like to be featured please let us know! Looking for parents who are new to this community and are looking for some peer support.

Tuesday, July 26, 2011

Question: Regrets

We all have things we wish we didn't do or that we did do or that we did differently. There's nothing like hindsight to make you feel guilty. For babyloss families, I think these regrets can become consuming because we don't get the chance to even try to make up for it. Our babies died, and we just can't undo it.

For me, at least, the guilt and regrets were something I felt I needed to hang onto for a long time. I felt like I needed to carry the pain and grief in order to honor my babies, especially Calvin. Giving voice to my regrets and admitting to them feels like a step towards healing. I am still learning that it's okay to be happy, that it's okay to forgive myself and accept that I did my best at the time, and to let peace in.

We all find our own paths in this grief journey, but maybe sharing about your regrets can be helpful, too--for you and for others. It's always less lonely when you know someone else feels the same.
  • What do you regret most about the events surrounding your loss?
  • If you were able to move past this regret, how did you let it go?
  • If you're in the process of letting it go, how are you working on this?
  • If you're still holding onto it, why can't you let this regret go?

Thursday, July 21, 2011

New Directory: Blogs on Carrying to Term After Fatal Diagnosis

If you or someone you know has a blog about the experiences of carrying to term after a poor prognosis/fatal diagnosis and would like to share, please leave the links below as a comment.


Friday, July 1, 2011

July's Feature: Carrying to Term after a Poor or Fatal Prognosis

Ten weeks before Faith Hope was born, her mommy, Myah, starting blogging. At her 19-week ultrasound, Myah learned that Faith had anencephaly, a fatal neural tube defect. Despite being told that her baby was unlikely to ever gain consciousness, that her child would not live for more than a few minutes after birth, Myah chose to carry Faith to term.

On her blog, We Walk By Faith, Not By Sight, Myah describes her posts and her reasons for sharing Faith and their story with the world: "The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did."

The first posts are about about Myah's pregnancy: her struggles with preparing for childbirth and for Faith's care, the grief of knowing her baby will not live, the joy she found in feeling her baby hiccup and kick.

After Faith was born crying and very much alive, Myah was able to bring her daughter home. Through the posts, videos, and photos, we get a glimpse into Faith's precious 93 days on earth: eating, smiles, jaundice, squealing, sneezes, ticklish feet. Then, on May 23, 2009, Faith passed away as Myah held her in her arms.

Have you faced a fatal diagnosis? Did you choose termination, induction, or carrying to term? Why? How do you feel about the decision you made?

My first baby died from amniotic band sequence. At the NT scan I had at 13 weeks, the ultrasound tech found amniotic bands; that's when we found out about the possibility of limb amputation and were offered the option to terminate. The results of the screening also showed a positive marker for Down's Syndrome. We chose to keep our baby and continue with the pregnancy, preparing for a special needs child, but hoping for the best. Unfortunately, we lost our son at 18 weeks, and after we found out he died, I was induced. The decision

Also, if you or someone you know has a blog about the experiences of carrying to term after a poor prognosis/fatal diagnosis and would like to share, please include the links below. We are working on putting together a new directory to help families going through a similar experience.