Ten weeks before Faith Hope was born, her mommy, Myah, starting blogging. At her 19-week ultrasound, Myah learned that Faith had anencephaly, a fatal neural tube defect. Despite being told that her baby was unlikely to ever gain consciousness, that her child would not live for more than a few minutes after birth, Myah chose to carry Faith to term.
On her blog, We Walk By Faith, Not By Sight, Myah describes her posts and her reasons for sharing Faith and their story with the world: "The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did."
The first posts are about about Myah's pregnancy: her struggles with preparing for childbirth and for Faith's care, the grief of knowing her baby will not live, the joy she found in feeling her baby hiccup and kick.
After Faith was born crying and very much alive, Myah was able to bring her daughter home. Through the posts, videos, and photos, we get a glimpse into Faith's precious 93 days on earth: eating, smiles, jaundice, squealing, sneezes, ticklish feet. Then, on May 23, 2009, Faith passed away as Myah held her in her arms.
Have you faced a fatal diagnosis? Did you choose termination, induction, or carrying to term? Why? How do you feel about the decision you made?
My first baby died from amniotic band sequence. At the NT scan I had at 13 weeks, the ultrasound tech found amniotic bands; that's when we found out about the possibility of limb amputation and were offered the option to terminate. The results of the screening also showed a positive marker for Down's Syndrome. We chose to keep our baby and continue with the pregnancy, preparing for a special needs child, but hoping for the best. Unfortunately, we lost our son at 18 weeks, and after we found out he died, I was induced. The decision
Also, if you or someone you know has a blog about the experiences of carrying to term after a poor prognosis/fatal diagnosis and would like to share, please include the links below. We are working on putting together a new directory to help families going through a similar experience.