Do your families do something during the holidays to remember your loved one? If not, what would the ideal be? What would you say to them if you could?
For me, I would tell them that I want Blaine remembered. I want an ornament on their tree. I want them to light a candle. I want them to not be afraid to mention him. It's that simple. Just remember that he was here. And that he mattered.
A resource blog for those who've suffered through any type of baby loss,
and for those who want to try to "get it".
About this blog
The intent of this blog is to form an interactive community where parents of dead babies can come together and swap information, stories, tears, memories and encouragement. This is designed to be a neutral place. We are not religious nor are we anti-religious. Come as you are. You can sign the guest book, add your baby(ies) to the baby name memory list, review books on infant death, add warnings about movies and books that contain a dead baby, add your blog to our directory or a number of other things. Don't hesitate to contact us if you have any questions or would like to see something added to this blog. Rule One: be kind to each other. We're all in this together. We all suffer and miss our babies madly.
What's New?
If you are new to blogging and would like to be featured please let us know! Looking for parents who are new to this community and are looking for some peer support.
Monday, December 12, 2011
Wednesday, November 30, 2011
Approaching Gloom or Joy?
Whether you celebrate religiously or not, Christmas can be a tough time after the loss of a loved one, especially a child. All of the expectations you had of the season; the family events you attend, minus one; questions from insensitive people or people who don't know about your loss; wanting to escape or be alone. Many of us deal with one or all of these issues. Here are some tips I found on various sites. Feel free to comment with your own tips.
http://www.opentohope.com/?post=surviving-the-holidays
http://sids-network.org/survhol.htm
www.griefshare.org/holidays
http://www.opentohope.com/?post=surviving-the-holidays
http://sids-network.org/survhol.htm
www.griefshare.org/holidays
Wednesday, November 2, 2011
Thursday, October 27, 2011
Penpals
I often get emails from moms looking to make personal connections with other moms who have been in the same situation. I'd like to start up a penpal program so that I have appropriate people to refer these emails to (Dad's included!). I am looking for people who fit in the following categories:
a relative or friend of someone who has lost a child but has not lost someone themselves
carrying to term
twin or other multiple loss where one or more survived
someone who has living children
medical termination
Also, I don't want to offend anyone but when I lost my son it was very important to me, as a Christian who does not go to church, to find another Christian to talk to. While the DBC is not a religious source if you are religious please also let me know (if you're comfortable).
If you would like to participate please understand that this is a commitment. The worst thing is to email your penpal and feel like they're too busy for you. Please email me if you are interested, especially if you are a man, we have one man so far but it would be nice to have some more. lilyorange2@yahoo.ca
a relative or friend of someone who has lost a child but has not lost someone themselves
carrying to term
twin or other multiple loss where one or more survived
someone who has living children
medical termination
Also, I don't want to offend anyone but when I lost my son it was very important to me, as a Christian who does not go to church, to find another Christian to talk to. While the DBC is not a religious source if you are religious please also let me know (if you're comfortable).
If you would like to participate please understand that this is a commitment. The worst thing is to email your penpal and feel like they're too busy for you. Please email me if you are interested, especially if you are a man, we have one man so far but it would be nice to have some more. lilyorange2@yahoo.ca
Monday, October 17, 2011
October 15th Wave of Light
I was, unfortunately, unable to participate in the Int'l Pregnancy and Infant Loss Awareness day on October 15th. How did all of you commemorate the day? A lot of my online BLM friends wrote on my FB wall or sent me pics of candles that were lit for Blaine or sent me a note or email letting me know they thought of him. Here is one...
Friday, October 14, 2011
Baby Dust by Deanna Roy - Review and Giveaway
Since you are all going to scroll down anyway I'll just announce the winner first! First to let you know how I picked. I found a website where you put names in a virtual hat and they assign the names. So, I put everyone's names in the hat, as well as my own, and it assigned the name to me. That's the person who won the giveaway. drum roll... Sarita Boyette! Please email me your address so I can snail mail you the book. lilyorange2@yahoo.ca
I was super eager to read this book. I remember when I lost my son Blaine going to the local library and trying to find anything I could. They had a total of four books on miscarriage or pregnancy loss. They were all either medical books or really old. None of them dealt with the emotions or changes I would go through as I lived through the loss of my child. "Baby Dust" is a fictional account of 5 woman and their loss. I say fictional because it is a novel however, it is a unique novel in that Deanna has taken real life stories and compiled them to make these characters. Whether fictional or not, so much of it rang true for me. I could see myself in each of the characters but the one I feel I related to the most was Melinda. The guilt she felt, the hallucinations, the attempts to "look normal," her hesitation to join the group of women and talk about her loss, I remember all of that.
I really enjoyed the book and as I said there was a little of each story that I could relate to and see myself and my son in. My only critisizm would be that each story ends with a sense of hope. The entire book is such a realistic representation of women and loss and yet I felt this was unrealistic. Yes, it's a novel and obviously a mother reading this, especially one who may be early in her grief, wants to believe that life will get better and easier. However, we all know that for some that isn't true. Life only gets harder and sometimes there is no hope. I would have liked to have seen one of the stories end in that way. That is just my opinion though. I would definitely recommend everyone read this book. It is also a great gift to give someone you may know who is dealing with a new loss or struggling to find resources.
I want to thank Deanna for allowing us to review the book and for graciously donating a copy of it for giveaway. I hope it is a huge success and am really hoping she does a follow up novel!
"Baby Dust" was dedicated by Deanna "For My (her) Angel Babies... Casey Shay December 1997 to April 1998 gestation, Daniel June 2001 to July 2001 gestation and Emma Hope August 2001 to October 2001 gestation."
I was super eager to read this book. I remember when I lost my son Blaine going to the local library and trying to find anything I could. They had a total of four books on miscarriage or pregnancy loss. They were all either medical books or really old. None of them dealt with the emotions or changes I would go through as I lived through the loss of my child. "Baby Dust" is a fictional account of 5 woman and their loss. I say fictional because it is a novel however, it is a unique novel in that Deanna has taken real life stories and compiled them to make these characters. Whether fictional or not, so much of it rang true for me. I could see myself in each of the characters but the one I feel I related to the most was Melinda. The guilt she felt, the hallucinations, the attempts to "look normal," her hesitation to join the group of women and talk about her loss, I remember all of that.
I really enjoyed the book and as I said there was a little of each story that I could relate to and see myself and my son in. My only critisizm would be that each story ends with a sense of hope. The entire book is such a realistic representation of women and loss and yet I felt this was unrealistic. Yes, it's a novel and obviously a mother reading this, especially one who may be early in her grief, wants to believe that life will get better and easier. However, we all know that for some that isn't true. Life only gets harder and sometimes there is no hope. I would have liked to have seen one of the stories end in that way. That is just my opinion though. I would definitely recommend everyone read this book. It is also a great gift to give someone you may know who is dealing with a new loss or struggling to find resources.
I want to thank Deanna for allowing us to review the book and for graciously donating a copy of it for giveaway. I hope it is a huge success and am really hoping she does a follow up novel!
"Baby Dust" was dedicated by Deanna "For My (her) Angel Babies... Casey Shay December 1997 to April 1998 gestation, Daniel June 2001 to July 2001 gestation and Emma Hope August 2001 to October 2001 gestation."
Friday, October 7, 2011
Giveaway - Baby Dust
It seems I may have made the giveaway too hard! I'm going to simplify so please disregard the previous posts instructions. If you would like to enter the giveaway for "Baby Dust" by Deanna Roy please do the following:
comment below
That's all folks!
comment below
That's all folks!
Saturday, October 1, 2011
October's Feature: Pregnancy Loss Info Website
When it actually sunk into my head that I had lost my son in April 2010 one of the first things I did was hit google. I can't remember what exactly I typed in but I ended up finding this website, http://www.pregnancyloss.info/. It was a God send. I went through the whole site, each link, each story. I visited it several times a day. Through that site I found many others and was initiated into the world of bloggers.
Deanna Roy founded http://www.pregnancyloss.info/ after the loss of her son Casey. Since then she has been setting up an online supportive resource for other parents in grief. The site is broken down into several categories. There you can find links to resources on healing, grief, physical recovery, subsequent pregnancies and memorials.
Deanna has just published her first novel on the subject of baby loss. It is called "Baby Dust" and features five unique fictional stories. You can read Holly's review of the book here. Please check back for part two of the DBC review on "Baby Dust" to be posted October 15th.
Deanna has graciously offered a copy of the book to us to use for a giveaway. If you are a blogger and are interested in winning the book here is what we need from you:
Write a post on your blog about something you found helpful or enjoyed reading about on the site, http://www.pregnancyloss.info/. Comment here with the link to your post.
If you are not a blogger, send us an email about something you found helpful or enjoyed reading about on the site, http://www.pregnancyloss.info/. Comment here once the email has been sent. Send email to lilyorange2@yahoo.ca
Deadline is October 14th. Winner will be drawn at random. We may publish your post or part of your post here on the DBC.
Deanna Roy founded http://www.pregnancyloss.info/ after the loss of her son Casey. Since then she has been setting up an online supportive resource for other parents in grief. The site is broken down into several categories. There you can find links to resources on healing, grief, physical recovery, subsequent pregnancies and memorials.
Deanna has just published her first novel on the subject of baby loss. It is called "Baby Dust" and features five unique fictional stories. You can read Holly's review of the book here. Please check back for part two of the DBC review on "Baby Dust" to be posted October 15th.
Deanna has graciously offered a copy of the book to us to use for a giveaway. If you are a blogger and are interested in winning the book here is what we need from you:
Write a post on your blog about something you found helpful or enjoyed reading about on the site, http://www.pregnancyloss.info/. Comment here with the link to your post.
If you are not a blogger, send us an email about something you found helpful or enjoyed reading about on the site, http://www.pregnancyloss.info/. Comment here once the email has been sent. Send email to lilyorange2@yahoo.ca
Deadline is October 14th. Winner will be drawn at random. We may publish your post or part of your post here on the DBC.
Friday, September 30, 2011
Baby Dust - Book Review Part One
The following review is thanks to our guest blogger, Holly from Caring for Carleigh.
The book Baby Dust by Deanna Roy is a fictional book based on the stories of real women who have lost babies. The book revolves around the stories of 5 women who have suffered the loss of their babies at varying gestations. We are able to see how their losses have affected every aspect of their lives-something you don’t normally see in a book.
One of my favorite quotes from the book is as follows: ”What horror to face, to choose the moment of your child’s death, to see the machines whir to a stop, the monitors to beep, the line of the heartbeat to go flat. No one really recovers from that.”
This book is different than anything I have ever read before about the loss of a baby. Most books are about coping with loss but with this book you see grief how it is. Grief isn’t painted as a pretty picture in this book but as something that is real and that affects far more women than people realize or care to acknowledge. The situations are real and relatable for babyloss moms. I highly recommend Baby Dust for anyone to read, whether their baby has died or not. I think this would actually be a very good book for people who have not lost to read as I think it would give them a glimpse into life after losing a baby.
The book Baby Dust by Deanna Roy is a fictional book based on the stories of real women who have lost babies. The book revolves around the stories of 5 women who have suffered the loss of their babies at varying gestations. We are able to see how their losses have affected every aspect of their lives-something you don’t normally see in a book.
One of my favorite quotes from the book is as follows: ”What horror to face, to choose the moment of your child’s death, to see the machines whir to a stop, the monitors to beep, the line of the heartbeat to go flat. No one really recovers from that.”
This book is different than anything I have ever read before about the loss of a baby. Most books are about coping with loss but with this book you see grief how it is. Grief isn’t painted as a pretty picture in this book but as something that is real and that affects far more women than people realize or care to acknowledge. The situations are real and relatable for babyloss moms. I highly recommend Baby Dust for anyone to read, whether their baby has died or not. I think this would actually be a very good book for people who have not lost to read as I think it would give them a glimpse into life after losing a baby.
Sunday, September 25, 2011
Int'l Babylost Father's Day
for all you Daddies <3
Oh Father, My Father
Close your eyes and feel me near
keep me inside your heart
let me live in your soul
you see through tears
the things we will never do
running across the fields of my youth
games never played
but it is not gone
those dreams you hold so close
for I live on in every child you see
little ones standing a lone... lost
or laughing in a playground
swinging so high
touching the tree tops
that is I
wanting just to love
feel my happiness in the song of a bird
see my sorrow in mother
hold her close forever
feeling your strength
for there will be one to come behind me
whether through God's grace or
from a different calling
a child chosen through His hand.
For in darkness, a light will appear
even if it is just the dawn
signaling a new beginning
and as you gather my mother to your heart
release your tears
let the healing begin
and discover that I am here
in your dreams
in your tomorrows
Every rainbow is the path home
and if you should stumble
I am the wings that shall lift you
Love, your child
Author: Theresa Cochrane
Copyrighted by: Growing Family, Inc.
Oh Father, My Father
Close your eyes and feel me near
keep me inside your heart
let me live in your soul
you see through tears
the things we will never do
running across the fields of my youth
games never played
but it is not gone
those dreams you hold so close
for I live on in every child you see
little ones standing a lone... lost
or laughing in a playground
swinging so high
touching the tree tops
that is I
wanting just to love
feel my happiness in the song of a bird
see my sorrow in mother
hold her close forever
feeling your strength
for there will be one to come behind me
whether through God's grace or
from a different calling
a child chosen through His hand.
For in darkness, a light will appear
even if it is just the dawn
signaling a new beginning
and as you gather my mother to your heart
release your tears
let the healing begin
and discover that I am here
in your dreams
in your tomorrows
Every rainbow is the path home
and if you should stumble
I am the wings that shall lift you
Love, your child
Author: Theresa Cochrane
Copyrighted by: Growing Family, Inc.
Saturday, September 24, 2011
Baby and Infant Urns
According to Blogger Stats, one of the main reasons people find this blog is because they are searching for baby or infant urns. Incredibly sad. I always say, I hate that you have to be here but I'm glad you are. I decided to do a post on different sites that offer cremain products and some creative ones that I've found. Please feel free in the comment section to add your own choices. Here is a link to our original post on baby urns.
Choosing a cremation product for your child is one of the hardest and most important things you will ever do as a bereaved parent. For most of us it will be the final resting place for our children's ashes. There are so many things to think of. You want something that will reflect your personality, your family and what the child meant to you. Maybe you want to include something that reminds you of your child such as butterflies or rainbows or a cartoon character. Most manufacturers of cremain products understand this and so have huge varieties to offer. You also want to look at how well the product will stand up over time. The quality of the product. Do you want something to bury or keep at home? For me personally I could not stand the thought of being away from my son's ashes. When I first brought him home I slept with the box. I had the idea to just carry them around in my purse but that didn't seem right. I decided on a pendant urn. A pendant urn is a necklace. You fill it with the cremains and then seal it and you wear it. Here is a photo of the one I purchased...
It was purchased from a website, "In the Light Urns."
For some, unfortunately, price is an issue. It was for me. I had to find something I loved for under $200. Almost all manufacturers offer many inexpensive choices. If price is not an issue you can purchase customized urns as well, in almost any imaginable design or material.
Here are some sites I have come across, some may be duplicated from our original post...
http://www.tootallspottery.com/Products/Urns/Urns1.html
http://www.inthelighturns.com/
http://www.urns.net/Infant-Urns-information.php
http://www.everlifememorials.com/v/urns/infant-urns.htm
http://www.evrmemories.com/infant-cremation-urns-s/316.htm
Choosing a cremation product for your child is one of the hardest and most important things you will ever do as a bereaved parent. For most of us it will be the final resting place for our children's ashes. There are so many things to think of. You want something that will reflect your personality, your family and what the child meant to you. Maybe you want to include something that reminds you of your child such as butterflies or rainbows or a cartoon character. Most manufacturers of cremain products understand this and so have huge varieties to offer. You also want to look at how well the product will stand up over time. The quality of the product. Do you want something to bury or keep at home? For me personally I could not stand the thought of being away from my son's ashes. When I first brought him home I slept with the box. I had the idea to just carry them around in my purse but that didn't seem right. I decided on a pendant urn. A pendant urn is a necklace. You fill it with the cremains and then seal it and you wear it. Here is a photo of the one I purchased...
It was purchased from a website, "In the Light Urns."
For some, unfortunately, price is an issue. It was for me. I had to find something I loved for under $200. Almost all manufacturers offer many inexpensive choices. If price is not an issue you can purchase customized urns as well, in almost any imaginable design or material.
Here are some sites I have come across, some may be duplicated from our original post...
http://www.tootallspottery.com/Products/Urns/Urns1.html
http://www.inthelighturns.com/
http://www.urns.net/Infant-Urns-information.php
http://www.everlifememorials.com/v/urns/infant-urns.htm
http://www.evrmemories.com/infant-cremation-urns-s/316.htm
Monday, September 19, 2011
Question: Mementos
What is your favourite keepsake? Who gave it to you? Why is it so memorable?
What is the one item, other than your child obviously, that you wish you had kept or received?
What is the one item, other than your child obviously, that you wish you had kept or received?
Tuesday, August 30, 2011
September's Feature: Mikayla's Grace
Baby girl Mikayla Grace lived a brief 36 hours on this earth. From that short and beautiful life Mikayla's Grace was inspired.
From their website:
Mikayla's Grace Inc. is a 501c3 non-profit to support families with a baby in the NICU and those who experience the death of an infant at Madison Area hospitals by providing NICU care packages and angel memory boxes that offer both practical and emotional support for the parents. Our first donation was to St. Mary's Hospital in Madison, Wisconsin where our daughter Mikayla was born. In memory of Mikayla's first Heavenly birthday on June 24, 2011 we donated 12 Angel memory boxes, 20 NICU care packages, 66 books, and 28 gowns with matching booties and hats. We are currently working on our goal to donate another 20 angel memory boxes and 20 NICU care packages in October 2011.
Mikayla's Grace just completed it's first Facebook auction. The auction raised funds for the first ever Forever in our Hearts Remembrance Day on October 15th. It was a great success. Proceeds from the event will go towards making Mikayla Grace's NICU and Angel Memory Care Boxes. Some of the items included in these care packages are: disposable cameras, journals, teddy bears, candles, sympathy card and much more. Most of us know how much these items can mean to us in our time of great need. Many of us go to the hospital completely unprepared, not even knowing we are about to lose our child. When I lost Blaine I had no idea what to do. I wish these resources had of been offered to me.
Please take a moment to check out Mikayla's Grace website and Facebook page. Questions: what were key items you wish you had of had at the hospital? What were you thankful to have? Have you made any donations of care packages and if so what did you include?
From their website:
Mikayla's Grace Inc. is a 501c3 non-profit to support families with a baby in the NICU and those who experience the death of an infant at Madison Area hospitals by providing NICU care packages and angel memory boxes that offer both practical and emotional support for the parents. Our first donation was to St. Mary's Hospital in Madison, Wisconsin where our daughter Mikayla was born. In memory of Mikayla's first Heavenly birthday on June 24, 2011 we donated 12 Angel memory boxes, 20 NICU care packages, 66 books, and 28 gowns with matching booties and hats. We are currently working on our goal to donate another 20 angel memory boxes and 20 NICU care packages in October 2011.
Mikayla's Grace just completed it's first Facebook auction. The auction raised funds for the first ever Forever in our Hearts Remembrance Day on October 15th. It was a great success. Proceeds from the event will go towards making Mikayla Grace's NICU and Angel Memory Care Boxes. Some of the items included in these care packages are: disposable cameras, journals, teddy bears, candles, sympathy card and much more. Most of us know how much these items can mean to us in our time of great need. Many of us go to the hospital completely unprepared, not even knowing we are about to lose our child. When I lost Blaine I had no idea what to do. I wish these resources had of been offered to me.
Please take a moment to check out Mikayla's Grace website and Facebook page. Questions: what were key items you wish you had of had at the hospital? What were you thankful to have? Have you made any donations of care packages and if so what did you include?
Sunday, August 14, 2011
An Exact Replica of a Figment of My Imagination
"A child dies in this book: a baby. A baby is stillborn. You don't have to tell me how sad that is: it happened to me and my husband, our baby, a son."
I just finished reading An Exact Replica of a Figment of My Imagination. It is incredibly sad and hopeful and heartwarming and heartbreaking all at once. When the author, Elizabeth McCracken, talks about the emotions surrounding the loss of her son, I feel I could have written those words myself.
McCracken was 41 weeks pregnant with her first child when it went horribly wrong. The baby died, for unexplained reasons. She had to deliver the baby, still, and find some way to carry on. She talks candidly about the loss, her feelings for her son before and after birth, her relationship with her husband, the effect it had on them, their friends and family. We follow her through the journey of telling family and friends; of moving and packing up the baby items; of finding a new neutral home to live in; to navigating the brand new world of subsequent pregnancy.
McCracken was fortunate to deliver a rainbow baby, born almost exactly one year later. The rainbow baby comes with a whole new set of emotions and she writes
"Everyday as I love this baby in my lap, I think of my other baby. Poor older brother, poor missing one....The love for the first magnifies the love for the second, and vice versa."
I think the sentiments and experiences in this book can ring true for many of us. I found myself not only able to put myself in McCracken's shoes but also in the shoes of the "childish and unnerving" mother from the book signing who laughed wholeheartedly over a seagull stealing her husband's tuna sub and pressed McCracken to write a book about the lighter side of loss. I think that's another book I'd dive right into!
I just finished reading An Exact Replica of a Figment of My Imagination. It is incredibly sad and hopeful and heartwarming and heartbreaking all at once. When the author, Elizabeth McCracken, talks about the emotions surrounding the loss of her son, I feel I could have written those words myself.
McCracken was 41 weeks pregnant with her first child when it went horribly wrong. The baby died, for unexplained reasons. She had to deliver the baby, still, and find some way to carry on. She talks candidly about the loss, her feelings for her son before and after birth, her relationship with her husband, the effect it had on them, their friends and family. We follow her through the journey of telling family and friends; of moving and packing up the baby items; of finding a new neutral home to live in; to navigating the brand new world of subsequent pregnancy.
McCracken was fortunate to deliver a rainbow baby, born almost exactly one year later. The rainbow baby comes with a whole new set of emotions and she writes
"Everyday as I love this baby in my lap, I think of my other baby. Poor older brother, poor missing one....The love for the first magnifies the love for the second, and vice versa."
I think the sentiments and experiences in this book can ring true for many of us. I found myself not only able to put myself in McCracken's shoes but also in the shoes of the "childish and unnerving" mother from the book signing who laughed wholeheartedly over a seagull stealing her husband's tuna sub and pressed McCracken to write a book about the lighter side of loss. I think that's another book I'd dive right into!
Tuesday, July 26, 2011
Question: Regrets
We all have things we wish we didn't do or that we did do or that we did differently. There's nothing like hindsight to make you feel guilty. For babyloss families, I think these regrets can become consuming because we don't get the chance to even try to make up for it. Our babies died, and we just can't undo it.
For me, at least, the guilt and regrets were something I felt I needed to hang onto for a long time. I felt like I needed to carry the pain and grief in order to honor my babies, especially Calvin. Giving voice to my regrets and admitting to them feels like a step towards healing. I am still learning that it's okay to be happy, that it's okay to forgive myself and accept that I did my best at the time, and to let peace in.
We all find our own paths in this grief journey, but maybe sharing about your regrets can be helpful, too--for you and for others. It's always less lonely when you know someone else feels the same.
For me, at least, the guilt and regrets were something I felt I needed to hang onto for a long time. I felt like I needed to carry the pain and grief in order to honor my babies, especially Calvin. Giving voice to my regrets and admitting to them feels like a step towards healing. I am still learning that it's okay to be happy, that it's okay to forgive myself and accept that I did my best at the time, and to let peace in.
We all find our own paths in this grief journey, but maybe sharing about your regrets can be helpful, too--for you and for others. It's always less lonely when you know someone else feels the same.
- What do you regret most about the events surrounding your loss?
- If you were able to move past this regret, how did you let it go?
- If you're in the process of letting it go, how are you working on this?
- If you're still holding onto it, why can't you let this regret go?
Thursday, July 21, 2011
New Directory: Blogs on Carrying to Term After Fatal Diagnosis
If you or someone you know has a blog about the experiences of carrying to term after a poor prognosis/fatal diagnosis and would like to share, please leave the links below as a comment.
http://thegiftofrachelslife.blogspot.com/
http://babyfaithhope.blogspot.com/
http://louielovescrystal.com/calvinphoenix/kissesforcalvin/
http://thegiftofrachelslife.blogspot.com/
http://babyfaithhope.blogspot.com/
http://louielovescrystal.com/calvinphoenix/kissesforcalvin/
Friday, July 1, 2011
July's Feature: Carrying to Term after a Poor or Fatal Prognosis
Ten weeks before Faith Hope was born, her mommy, Myah, starting blogging. At her 19-week ultrasound, Myah learned that Faith had anencephaly, a fatal neural tube defect. Despite being told that her baby was unlikely to ever gain consciousness, that her child would not live for more than a few minutes after birth, Myah chose to carry Faith to term.
On her blog, We Walk By Faith, Not By Sight, Myah describes her posts and her reasons for sharing Faith and their story with the world: "The posts here are very personal, emotional, brutally honest, and at times ungraceful. It's not easy for me to share so much of our life with the world. But it is my hope that by sharing our story, God will be glorified for all He has done for us. I also hope that this blog will reach other moms out there who are facing the same prenatal diagnosis that I did."
The first posts are about about Myah's pregnancy: her struggles with preparing for childbirth and for Faith's care, the grief of knowing her baby will not live, the joy she found in feeling her baby hiccup and kick.
After Faith was born crying and very much alive, Myah was able to bring her daughter home. Through the posts, videos, and photos, we get a glimpse into Faith's precious 93 days on earth: eating, smiles, jaundice, squealing, sneezes, ticklish feet. Then, on May 23, 2009, Faith passed away as Myah held her in her arms.
Have you faced a fatal diagnosis? Did you choose termination, induction, or carrying to term? Why? How do you feel about the decision you made?
My first baby died from amniotic band sequence. At the NT scan I had at 13 weeks, the ultrasound tech found amniotic bands; that's when we found out about the possibility of limb amputation and were offered the option to terminate. The results of the screening also showed a positive marker for Down's Syndrome. We chose to keep our baby and continue with the pregnancy, preparing for a special needs child, but hoping for the best. Unfortunately, we lost our son at 18 weeks, and after we found out he died, I was induced. The decision
Also, if you or someone you know has a blog about the experiences of carrying to term after a poor prognosis/fatal diagnosis and would like to share, please include the links below. We are working on putting together a new directory to help families going through a similar experience.
Sunday, June 19, 2011
A Poem For Fathers
Happy Father's Day. Here is a poem I found for Father's who have lost a child. Often they are forgotten as they care for the mother and other children or hide their grief. But it's days like this that remind us, they lost a child too.
~~ A poem for Fathers ~~
It must be very difficult
To be a man in grief,
Since "men don't cry"
and "men are strong"
No tears can bring relief.
It must be very difficult
To stand up to the test,
And field the calls and visitors
So she can get some rest.
They always ask if she's all right
And what she's going through.
But seldom take his hand and ask,
"My friend, but how are you?"
He hears her crying in the night
And thinks his heart will break.
He dries her tears and comforts her,
But "stays strong" for her sake.
It must be very difficult
To start each day anew.
And try to be so very brave-
He lost his baby too.
by Eileen Knight Hagemeister
~~ A poem for Fathers ~~
It must be very difficult
To be a man in grief,
Since "men don't cry"
and "men are strong"
No tears can bring relief.
It must be very difficult
To stand up to the test,
And field the calls and visitors
So she can get some rest.
They always ask if she's all right
And what she's going through.
But seldom take his hand and ask,
"My friend, but how are you?"
He hears her crying in the night
And thinks his heart will break.
He dries her tears and comforts her,
But "stays strong" for her sake.
It must be very difficult
To start each day anew.
And try to be so very brave-
He lost his baby too.
by Eileen Knight Hagemeister
Thursday, June 16, 2011
Question: What Makes You Grateful
I would like to make this a writing project. Please take the below topic and write about it on your own blog. It's a way for us to connect and also for those who may be new to meet some people and get a different perspective. Comment here with a link to your post on your blog and please reference The DBC on your blog when posting. Feel free to also use the below graphic which you can simply save to your computer and place as a picture within your blog post. I hope you'll participate.
Gratitude. Since the loss of my child(ren) the one thing I am most grateful for is...? I know now that before my loss I took ... for granted? From now on I will make sure to recognize ... in my life and it's importance to me?
Wednesday, June 1, 2011
June's Feature: A New Blog
AJ has just recently started her blog, "Rainbow Making 101." She and her husband started TTC in March of 2010 and were pregnant by July. Unfortunately they lost their first child in August of 2010. Rainbow Making 101 is a story of their new journey to conceive their Rainbow Baby.
This is one definition of a Rainbow Baby, not sure who authored this, I found it on Babycenter.
Rainbow babies: In some circles, babies born to families after the loss of a child are referred to as "Rainbow Babies." The idea is that the baby is like a rainbow after a storm. "Rainbow Babies" is the understanding that the beauty of a rainbow does not negate the ravages of the storm. When a rainbow appears, it doesn't mean the storm never happened or that the family is not still dealing with its aftermath. What it means is that something beautiful and full of light has appeared in the midst of the darkness and clouds. Storm clouds may still hover but the rainbow provides a counterbalance of color, energy and hope.
AJ's blog gives a very detailed account of their struggle to conceive since the loss of their child. She shares her TTC Timeline on the right side of the blog and through her posts gives a very personal account of the ups and downs of testing, the dreaded 2WW, the emotional rollercoaster that is TTC and my favourite post of hers, "Rainbow Making A - Z."
Most of us know what a tumultous time TTC can be so please head over to AJ's blog and lend her some support.
If you are in the process of TTC and would like to share please leave a comment with your story or link to your blog.
This is one definition of a Rainbow Baby, not sure who authored this, I found it on Babycenter.
Rainbow babies: In some circles, babies born to families after the loss of a child are referred to as "Rainbow Babies." The idea is that the baby is like a rainbow after a storm. "Rainbow Babies" is the understanding that the beauty of a rainbow does not negate the ravages of the storm. When a rainbow appears, it doesn't mean the storm never happened or that the family is not still dealing with its aftermath. What it means is that something beautiful and full of light has appeared in the midst of the darkness and clouds. Storm clouds may still hover but the rainbow provides a counterbalance of color, energy and hope.
AJ's blog gives a very detailed account of their struggle to conceive since the loss of their child. She shares her TTC Timeline on the right side of the blog and through her posts gives a very personal account of the ups and downs of testing, the dreaded 2WW, the emotional rollercoaster that is TTC and my favourite post of hers, "Rainbow Making A - Z."
Most of us know what a tumultous time TTC can be so please head over to AJ's blog and lend her some support.
If you are in the process of TTC and would like to share please leave a comment with your story or link to your blog.
Thursday, May 26, 2011
New Directory: Blogs on TTC and Infertility After Loss
This is a blog directory of Mom's who are currently trying to conceive or struggling with infertility after a previous baby loss. Often times conceiving a child after the loss of another can be especially difficult, not just physically but there is an emotional toll on the families as well.
http://myangelsinheaven.blogspot.com/
http://lifewithoutbrenna.blogspot.com/
http://onceamother.blogspot.com/search/label/infertility
http://margaretsundone.blogspot.com/
http://fragments.louielovescrystal.com/
If you would like to submit a blog written by a dead baby momma simply add it in the comment section. Also, if there is a misprint, please accept my apologies and inform me ASAP!
http://myangelsinheaven.blogspot.com/
http://lifewithoutbrenna.blogspot.com/
http://onceamother.blogspot.com/search/label/infertility
http://margaretsundone.blogspot.com/
http://fragments.louielovescrystal.com/
If you would like to submit a blog written by a dead baby momma simply add it in the comment section. Also, if there is a misprint, please accept my apologies and inform me ASAP!
Thursday, May 12, 2011
PAIL Events
I would like to create an Event page for Pregnancy and Infant Loss events in any area. If you have an event in your area such as a Butterfly Release or Candle Lighting please email me or comment on this post. I will add it to the Event Page. As much information as you can provide is appreciated, a link to the website, address, time, date, activity, etc. Don't worry about where you live or if you feel it's "too local," as readers come here from all over the place.
lilyorange2@yahoo.ca
lilyorange2@yahoo.ca
Question: How was your Mother's Day?
Mother's Day is one of the more difficult holidays for many baby loss mommies because it brings with it doubt, especially for women who have lost their only children (Am I still a mother?), and because it makes the void in one's heart and in one's lineup of living children all the more apparent.
Now that this bittersweet holiday has come and gone, can you share how it was for you?
Now that this bittersweet holiday has come and gone, can you share how it was for you?
- If this was your first Mother's Day after a loss, did it turn out as you expected?
- If this isn't your first, has it changed for you? Has it gotten any better?
- Did you do or receive anything that made this day special for you?
- Were you able to honor your baby/babies?
- Was there anything you wish someone had done for you?
Saturday, May 7, 2011
Happy Mother's Day
Happy Mother's Day to everyone out there. Whether you have a child in your arms or not you are still a Mother and I hope you take time to care for yourself and do something special FOR YOU tomorrow.
A Mother's Day Ode by Susan Mosquera
I am your mother, but you, my child, I cannot hold.
It'll get easier with time, or so I'm told.
People may forget that I am your mother.
I'm part of a secret club we only share with one another.
But that doesn't diminish my love for you.
I think of you the whole day through.
I wonder what you're doing, my Precious Little One.
We are connected by an infinite bond, which cannot come undone.
I will not let death tear us apart.
I promise to always keep you alive in my heart.
A Mother's Day Ode by Susan Mosquera
I am your mother, but you, my child, I cannot hold.
It'll get easier with time, or so I'm told.
People may forget that I am your mother.
I'm part of a secret club we only share with one another.
But that doesn't diminish my love for you.
I think of you the whole day through.
I wonder what you're doing, my Precious Little One.
We are connected by an infinite bond, which cannot come undone.
I will not let death tear us apart.
I promise to always keep you alive in my heart.
Sunday, May 1, 2011
May's Feature - Unable to Conceive after Loss
Jan and her husband have lost three babies. They lost their first—a birth control surprise—at 9 1/2 weeks, on July 2, 2008. After being diagnosed with PCOS, Jan tried Clomid and found out she was pregnant again in August 2009. At 10 1/2 weeks, she learned that she was carrying twins, but had lost one of them. They hoped to bring the other baby home, but a few weeks later, the same ultrasound that showed they were having a girl also told them that she only had a 1% chance of survival because she didn't have any amniotic fluid left. On November 19, they learned that Carly Noel's heart had stopped beating.
In February 2010, just a few months after losing Carly, Jan developed a blood clot that spanned the length of her left leg. She had to be hospitalized and receive transfusions to treat and break it down. Because of her health, she cannot conceive again. She also cannot use surrogacy to have a biological child, because of the risks of blood clots and ovarian rupture.
On her blog, Angels in Heaven, Jan writes messages to her daughter, shares her feelings on not being able to have any more children of her own, and explores the challenges of not being a "real mommy" in others' eyes. Please stop by Jan's blog to read more of her story and give her some encouragement.
Also, if you have experience with being unable to conceive after losing your baby, or if you have any stories, websites, or blogs that relate—whether the inability to conceive it is due to health reasons, infertility, tubal ligation, or other reasons—please share them with us.
In February 2010, just a few months after losing Carly, Jan developed a blood clot that spanned the length of her left leg. She had to be hospitalized and receive transfusions to treat and break it down. Because of her health, she cannot conceive again. She also cannot use surrogacy to have a biological child, because of the risks of blood clots and ovarian rupture.
On her blog, Angels in Heaven, Jan writes messages to her daughter, shares her feelings on not being able to have any more children of her own, and explores the challenges of not being a "real mommy" in others' eyes. Please stop by Jan's blog to read more of her story and give her some encouragement.
Also, if you have experience with being unable to conceive after losing your baby, or if you have any stories, websites, or blogs that relate—whether the inability to conceive it is due to health reasons, infertility, tubal ligation, or other reasons—please share them with us.
Sunday, April 24, 2011
Another Holiday Minus
For those of us that celebrate Easter this is another occasion where we are missing a precious loved one. Another family event with someone sadly absent. I hope you are able to enjoy the Easter holiday even with the reminder that there should be another bunny hopping around hunting for eggs.
To continue with the theme of family and friend support here is a poem which I received from one of the bereavement groups I reached out to.
Dear Friends - written by Eloise Cole
Dear Friends,
If you were to ask me to measure the love I have
for any member of my family,
I would be hard pressed to answer.
Surely my love is higher than mountain tops
And deeper than the oceans
And broader than all the deserts in the world.
So too is my love for the baby who has died.
How can I be asked to pack away mementos and memories
and not speak his name?
He is and always will be a part of me.
No one can crate the depths of the ocean,
The breadth of the deserts,
Nor can my love be boxed and carried away.
Dear friends,
Please do not set limits on my grief.
Neither my love
Nor the depths of my sorrow can be measured.
I am unable to heal on a timetable set by another.
Weeks and months have no meaning
when set against the measure of my love.
Walk with me please, this difficult road of recovery,
I promise you I will heal,
When I have grieved enough for me.
To continue with the theme of family and friend support here is a poem which I received from one of the bereavement groups I reached out to.
Dear Friends - written by Eloise Cole
Dear Friends,
If you were to ask me to measure the love I have
for any member of my family,
I would be hard pressed to answer.
Surely my love is higher than mountain tops
And deeper than the oceans
And broader than all the deserts in the world.
So too is my love for the baby who has died.
How can I be asked to pack away mementos and memories
and not speak his name?
He is and always will be a part of me.
No one can crate the depths of the ocean,
The breadth of the deserts,
Nor can my love be boxed and carried away.
Dear friends,
Please do not set limits on my grief.
Neither my love
Nor the depths of my sorrow can be measured.
I am unable to heal on a timetable set by another.
Weeks and months have no meaning
when set against the measure of my love.
Walk with me please, this difficult road of recovery,
I promise you I will heal,
When I have grieved enough for me.
Saturday, April 16, 2011
Question: Reconciling
How supportive have your family and friends been since the loss of your child? How have you reconciled with those who you feel did not support you or did not remember the milestones, such as due dates, angelversary's, birthdays? What is one thing you would like them to know? For those struggling with family and friends you may want to read and/or share this
Wednesday, March 16, 2011
Question: Memory Boxes
I am creating some memory boxes to donate to the hospital in memory of my son's one year Angelversary.
Has anyone else put together boxes to donate or give to BLM friends? What sort of items did you include? Did you receive one from the hospital or a bereavement group after your loss? What was included in it and what did you appreciate the most?
Has anyone else put together boxes to donate or give to BLM friends? What sort of items did you include? Did you receive one from the hospital or a bereavement group after your loss? What was included in it and what did you appreciate the most?
Help Needed
Okay, I never got around to doing the Featured Blog. To be honest I am at a creative dead end. I have even been neglecting my own blog. With all of my one year anniversaries with Blaine coming up and with being pregnant during those one year anniversaries I just really don't have much strength for writing. I hate not to post things because I know how many people read this regularly. So, I have to ask for some help. If anyone would like to help with that Feature please let me know. Even if we could switch off months. I'm kind of out of ideas and no one has suggested any so maybe having a second person would help stir it up.
Saturday, February 26, 2011
Updates
I've been quite busy lately, haven't had time to come over here much. I'm going to start the Monthly Blog Feature back up again on March 1st. If anyone has suggestions please let me know. Amanda has made a really neat button so if you're blog is featured please feel free to put the button on your blog.
Monday, February 14, 2011
Happy Valentine's Day - Question
Did you do anything special today for your little one? Do you and your partner still try to make it romantic? Or is it just another day?
Saturday, January 22, 2011
Name Photos
We all know how wonderful and heartwarming it is to receive a photo of our child's name. For some of us we will never have any actual photos of our children. Receiving a photo from someone means that that person has taken the time to think of your child. For one moment in time, somewhere else in the world someone thought your child's name and acted on their behalf. The above is one of my favourites and one of the first that I received for my boy. I received it from Angela mother to Dash.
Do you have a favourite photo of your child's name? Where was it taken? Why is it significant to you?
Do you have a blog where you create free name photos for parents that you would like to share?
Sunday, January 16, 2011
Calendar
I have updated the calendar. If you did not include a name or date for your baby I was not able to add them. Feel free to comment on any of the related posts and I will update or add at anytime. Thanks for allowing me to do this for your little ones.
Saturday, January 8, 2011
DBC Calendar
I'm going to update our calendar. If your child's name is NOT listed in the "In Memory of our Babies" post or in the "Guest Book" and you want them added to the calendar then please comment and put *New* and include your childs name; date of birth; heaven date; your blog or email if you wish to share. I am including the comment section so if you have already commented on either of those posts with your info then no need to comment again. If there is an error on the list "In Memory of our Babies" or the "Guest Book" or if you want to provide more info that we do not already have then please comment and put *Correction* and the accurate info so I know it's not new.
Childs Name
Birth Date
Heaven Date (if different than Birth)
Your blog or email if you want to share
Also, please consider putting our new button on your blog!! Thanks to Amanda for making it, I absolutely love it. To me it looks like two things. One a child's hand reaching out, maybe to grab hold of momma. And two a child's hand saying STOP! Like pay attention to what we have to say!
Childs Name
Birth Date
Heaven Date (if different than Birth)
Your blog or email if you want to share
Also, please consider putting our new button on your blog!! Thanks to Amanda for making it, I absolutely love it. To me it looks like two things. One a child's hand reaching out, maybe to grab hold of momma. And two a child's hand saying STOP! Like pay attention to what we have to say!
Wednesday, January 5, 2011
Sunday, January 2, 2011
Happy New Year
How did you spend the New Year? Did you do anything special for your little one? How are you feeling about 2011? Optimistic or just another day?
To be quite honest I've run out of topics for the blog of the month so if you have some ideas please share!!
To be quite honest I've run out of topics for the blog of the month so if you have some ideas please share!!
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